ServiceFree🇧🇩
Steady Hands Care, Chattogram
Run by people who have been through parenting a seriously ill child and rare disease themselves.
Evenings and weekends
Rare disease support in Bangladesh
For people and families facing conditions few doctors have seen. Talk with people in Bangladesh who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Bangladesh circle: Weekly check-in ·
If you need someone right now
Help for rare disease in Bangladesh
ProfessionalFree🇧🇩
Northside Debt Advice, Narayanganj
Practical help for people dealing with living with cancer and difficult or high-risk pregnancy, plus a weekly drop-in.
Mon to Fri, 9 to 5
Service🇧🇩
Steady Hands Care, Sylhet
Run by people who have been through diabetes and heart conditions themselves.
Evenings and weekends
From people who came through it
“If you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.”
moonwest · been through rare disease“Reading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.”
spark_dog33 · been through rare disease“Reading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.”
Saeed M · been through rare disease“Hello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.”
tide_flame45 · been through rare disease