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Rare disease support in India

For people and families facing conditions few doctors have seen. Talk with people in India who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the India circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in India

ProfessionalFeatured๐Ÿ‡ฎ๐Ÿ‡ณ

Clear Path Counselling, Delhi

We help people with living with cancer and difficult or high-risk pregnancy, in person in Delhi and online. Sessions are relaxed and you set the pace.

Evenings and weekends

Charity๐Ÿ‡ฎ๐Ÿ‡ณ

Bhubaneswar Community Food Hub

Practical help for people dealing with facing a terminal illness and adjusting to a disability, plus a weekly drop-in.

Mon to Fri, 9 to 5

Product๐Ÿ‡ฎ๐Ÿ‡ณ

Calm Corner Weighted Blankets, Ahmedabad

Run by people who have been through chronic pain and living with cancer themselves.

Mon to Fri, 9 to 5

Service๐Ÿ‡ฎ๐Ÿ‡ณ

Easy Ride Patient Transport, Thiruvananthapuram

Run by people who have been through chronic pain and rare disease themselves.

Evenings and weekends

Professional๐Ÿ‡ฎ๐Ÿ‡ณ

Northside Debt Advice, Kanpur

Run by people who have been through long covid and rare disease themselves.

Weekdays and Saturday mornings

ProfessionalLow cost๐Ÿ‡ฎ๐Ÿ‡ณ

Raipur Grief Counselling

Run by people who have been through caring for someone with cancer and caring for someone with dementia themselves.

Weekdays and Saturday mornings

ProfessionalLow costFeatured๐Ÿ‡ฎ๐Ÿ‡ณ

Northside Debt Advice, Vadodara

Practical help for people dealing with living with cancer and long covid, plus a weekly drop-in.

Evenings and weekends

ProfessionalFree๐Ÿ‡ฎ๐Ÿ‡ณ

Clear Path Counselling, Siliguri

Run by people who have been through infertility and ivf and chronic illness themselves.

Weekdays and Saturday mornings

ProfessionalLow cost๐Ÿ‡ฎ๐Ÿ‡ณ

Dehradun Grief Counselling

Practical help for people dealing with chronic illness and stroke recovery, plus a weekly drop-in.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease

Rare disease support in other countries