ProfessionalFeatured🇬🇧
Northside Debt Advice, Edinburgh
A small team supporting ms, parkinson's, als and neurological conditions and chronic pain. Free first conversation, then low-cost sessions.
Evenings and weekends
Rare disease support in United Kingdom
For people and families facing conditions few doctors have seen. Talk with people in United Kingdom who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the United Kingdom circle: Weekly check-in ·
If you need someone right now
Help for rare disease in United Kingdom
ProfessionalLow cost🇬🇧
Callum Counselling, Cambridge
Practical help for people dealing with long covid and rare disease, plus a weekly drop-in.
Weekdays and Saturday mornings
CharityLow cost🇬🇧
The Lantern Trust, Cambridge
A small team supporting living with cancer and rare disease. Free first conversation, then low-cost sessions.
Tue to Sat, 10 to 6
GovernmentFree🇬🇧
NHS 111
Urgent medical help and advice in England, including mental health (option 2).
24/7
ProfessionalFeatured🇬🇧
Open Door Psychotherapy, Leicester
We help people with ms, parkinson's, als and neurological conditions and difficult or high-risk pregnancy, in person in Leicester and online. Sessions are relaxed and you set the pace.
Weekdays and Saturday mornings
ProfessionalFreeFeatured🇬🇧
Plymouth Talking Therapies
We help people with difficult or high-risk pregnancy and organ transplant, in person in Plymouth and online. Sessions are relaxed and you set the pace.
Mon to Fri, 9 to 5
ServiceFreeFeatured🇬🇧
Steady Hands Care, Plymouth
We help people with caring for someone with cancer and chronic pain, in person in Plymouth and online. Sessions are relaxed and you set the pace.
Mon to Fri, 9 to 5
ProfessionalFeatured🇬🇧
Sunderland Talking Therapies
Run by people who have been through caring for someone with dementia and facing a terminal illness themselves.
Weekdays and Saturday mornings
ProductFree🇬🇧
Calm Corner Weighted Blankets, Birmingham
We help people with living with cancer and organ transplant, in person in Birmingham and online. Sessions are relaxed and you set the pace.
Tue to Sat, 10 to 6
From people who came through it
“to whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.”
hugosong · been through rare disease“To whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.”
Fuz M · been through rare disease“If you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.”
moonwest · been through rare disease“Not that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.”
lemon_fox54 · been through rare disease