Rare disease support in Norway
For people and families facing conditions few doctors have seen. Talk with people in Norway who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Norway circle: Weekly check-in ·
If you need someone right now
From people who came through it
“Not that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.”
lemon_fox54 · been through rare disease“For anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.”
waveeast1993 · been through rare disease“If you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.”
moonwest · been through rare disease“Reading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.”
spark_dog33 · been through rare disease