Skip to content
SupportMeet

Rare disease support in Finland

For people and families facing conditions few doctors have seen. Talk with people in Finland who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Finland circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Finland

ServiceFree๐Ÿ‡ซ๐Ÿ‡ฎ

Easy Ride Patient Transport, Turku

A small team supporting facing a terminal illness and caring for someone with cancer. Free first conversation, then low-cost sessions.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease
  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease

Rare disease support in other countries