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Rare disease support in Spain

For people and families facing conditions few doctors have seen. Talk with people in Spain who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Spain circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Spain

ProfessionalLow cost๐Ÿ‡ช๐Ÿ‡ธ

Open Door Psychotherapy, Valencia

Run by people who have been through caring for someone with dementia and heart conditions themselves.

Mon to Fri, 9 to 5

ServiceLow cost๐Ÿ‡ช๐Ÿ‡ธ

Oviedo Home Help

We help people with chronic illness and parenting a seriously ill child, in person in Oviedo and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

Professional๐Ÿ‡ช๐Ÿ‡ธ

Rubรฉn Therapy Practice

We help people with caring for someone with dementia and ms, parkinson's, als and neurological conditions, in person in Oviedo and online. Sessions are relaxed and you set the pace.

Tue to Sat, 10 to 6

From people who came through it

  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease
  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease
  • โ€œto whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.โ€

    hugosong ยท been through rare disease

Rare disease support in other countries