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Rare disease support in Poland

For people and families facing conditions few doctors have seen. Talk with people in Poland who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Poland circle: Weekly check-in ·

If you need someone right now

Help for rare disease in Poland

ProductLow cost🇵🇱

Calm Corner Weighted Blankets, Rzeszów

Practical help for people dealing with caring for someone with dementia and caring for someone with cancer, plus a weekly drop-in.

Evenings and weekends

ServiceFree🇵🇱

Easy Ride Patient Transport, Gdynia

We help people with living with cancer and difficult or high-risk pregnancy, in person in Gdynia and online. Sessions are relaxed and you set the pace.

Mon to Fri, 9 to 5

Service🇵🇱

Easy Ride Patient Transport, Katowice

Run by people who have been through caring for someone with cancer and chronic illness themselves.

Evenings and weekends

ProfessionalLow cost🇵🇱

Open Door Psychotherapy, Łódź

Run by people who have been through chronic illness and chronic pain themselves.

Evenings and weekends

From people who came through it

  • “For anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.”

    waveeast1993 · been through rare disease
  • “Hello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.”

    tide_flame45 · been through rare disease
  • “Reading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.”

    spark_dog33 · been through rare disease
  • “Reading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.”

    lovely_quiet · been through rare disease

Rare disease support in other countries