Skip to content
SupportMeet

Rare disease support in United States

For people and families facing conditions few doctors have seen. Talk with people in United States who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the United States circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in United States

ProfessionalLow cost๐Ÿ‡บ๐Ÿ‡ธ

Dale Counselling

Run by people who have been through chronic pain and caring for someone with cancer themselves.

Tue to Sat, 10 to 6

Professional๐Ÿ‡บ๐Ÿ‡ธ

Earl Therapy Practice, Bakersfield

We help people with living with cancer and adjusting to a disability, in person in Bakersfield and online. Sessions are relaxed and you set the pace.

Tue to Sat, 10 to 6

ServiceLow cost๐Ÿ‡บ๐Ÿ‡ธ

Easy Ride Patient Transport, Denver

Run by people who have been through chronic illness and rare disease themselves.

Evenings and weekends

ServiceLow cost๐Ÿ‡บ๐Ÿ‡ธ

Hartford Home Help

We help people with caring for someone with cancer and infertility and ivf, in person in Hartford and online. Sessions are relaxed and you set the pace.

Mon to Fri, 9 to 5

ProfessionalFree๐Ÿ‡บ๐Ÿ‡ธ

Larry Counselling

A small team supporting adjusting to a disability and diabetes. Free first conversation, then low-cost sessions.

Evenings and weekends

ServiceLow costFeatured๐Ÿ‡บ๐Ÿ‡ธ

Easy Ride Patient Transport, Nashville

We help people with chronic illness and infertility and ivf, in person in Nashville and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

CharityLow costFeatured๐Ÿ‡บ๐Ÿ‡ธ

Savannah Carers Network

Practical help for people dealing with facing a terminal illness and caring for someone with dementia, plus a weekly drop-in.

Evenings and weekends

ServiceFeatured๐Ÿ‡บ๐Ÿ‡ธ

Steady Hands Care, St.

Practical help for people dealing with living with hiv and living with cancer, plus a weekly drop-in.

Evenings and weekends

CharityFreeFeatured๐Ÿ‡บ๐Ÿ‡ธ

The Lantern Trust, Portland

Run by people who have been through chronic illness and parenting a seriously ill child themselves.

Evenings and weekends

From people who came through it

  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œHello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.โ€

    tide_flame45 ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œReading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.โ€

    lovely_quiet ยท been through rare disease

Rare disease support in other countries