Charity🇵🇹
Setúbal Community Food Hub
Practical help for people dealing with caring for someone with dementia and heart conditions, plus a weekly drop-in.
Weekdays and Saturday mornings
Rare disease support in Portugal
For people and families facing conditions few doctors have seen. Talk with people in Portugal who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Portugal circle: Weekly check-in ·
If you need someone right now
Help for rare disease in Portugal
Professional🇵🇹
Clear Path Counselling, Faro
Practical help for people dealing with long covid and caring for someone with cancer, plus a weekly drop-in.
Mon to Fri, 9 to 5
From people who came through it
“Reading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.”
spark_dog33 · been through rare disease“to whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.”
hugosong · been through rare disease“For anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.”
waveeast1993 · been through rare disease“Reading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.”
Saeed M · been through rare disease