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Rare disease support in France

For people and families facing conditions few doctors have seen. Talk with people in France who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the France circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in France

ProfessionalFree๐Ÿ‡ซ๐Ÿ‡ท

Reims Grief Counselling

A small team supporting ms, parkinson's, als and neurological conditions and chronic pain. Free first conversation, then low-cost sessions.

Evenings and weekends

Product๐Ÿ‡ซ๐Ÿ‡ท

Calm Corner Weighted Blankets, Rouen

A small team supporting caring for someone with cancer and chronic pain. Free first conversation, then low-cost sessions.

Mon to Fri, 9 to 5

CommunityFree๐Ÿ‡ซ๐Ÿ‡ท

Marseille Peer Support Group

Run by people who have been through chronic pain and difficult or high-risk pregnancy themselves.

Evenings and weekends

ProfessionalLow cost๐Ÿ‡ซ๐Ÿ‡ท

Olivier Counselling, Rouen

A small team supporting stroke recovery and long covid. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

ServiceLow cost๐Ÿ‡ซ๐Ÿ‡ท

Paris Home Help

We help people with diabetes and ms, parkinson's, als and neurological conditions, in person in Paris and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

From people who came through it

  • โ€œReading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.โ€

    lovely_quiet ยท been through rare disease
  • โ€œHello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.โ€

    tide_flame45 ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease

Rare disease support in other countries