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Rare disease support in Ireland

For people and families facing conditions few doctors have seen. Talk with people in Ireland who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Ireland circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Ireland

ProfessionalLow cost๐Ÿ‡ฎ๐Ÿ‡ช

Northside Debt Advice, Sligo

A small team supporting rare disease and long covid. Free first conversation, then low-cost sessions.

Mon to Fri, 9 to 5

Product๐Ÿ‡ฎ๐Ÿ‡ช

Calm Corner Weighted Blankets, Dublin

We help people with living with cancer and infertility and ivf, in person in Dublin and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

From people who came through it

  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease

Rare disease support in other countries