Skip to content
SupportMeet

Rare disease support in Japan

For people and families facing conditions few doctors have seen. Talk with people in Japan who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Japan circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Japan

ProfessionalLow cost๐Ÿ‡ฏ๐Ÿ‡ต

Riku Therapy Practice

A small team supporting chronic pain and caring for someone with cancer. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

ProductFree๐Ÿ‡ฏ๐Ÿ‡ต

Calm Corner Weighted Blankets, Saitama

Run by people who have been through stroke recovery and living with hiv themselves.

Tue to Sat, 10 to 6

Professional๐Ÿ‡ฏ๐Ÿ‡ต

Clear Path Counselling, Saitama

A small team supporting living with cancer and infertility and ivf. Free first conversation, then low-cost sessions.

Evenings and weekends

From people who came through it

  • โ€œReading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.โ€

    lovely_quiet ยท been through rare disease
  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease
  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease

Rare disease support in other countries