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Rare disease support in Brazil

For people and families facing conditions few doctors have seen. Talk with people in Brazil who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Brazil circle: Weekly check-in ·

If you need someone right now

Help for rare disease in Brazil

CharityFreeFeatured🇧🇷

Juiz Carers Network

A small team supporting diabetes and facing a terminal illness. Free first conversation, then low-cost sessions.

Evenings and weekends

CommunityLow cost🇧🇷

Walk and Talk João

A small team supporting heart conditions and rare disease. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

ProfessionalLow cost🇧🇷

André Counselling

We help people with caring for someone with dementia and organ transplant, in person in Niterói and online. Sessions are relaxed and you set the pace.

Evenings and weekends

Product🇧🇷

Calm Corner Weighted Blankets, Fortaleza

We help people with ms, parkinson's, als and neurological conditions and difficult or high-risk pregnancy, in person in Fortaleza and online. Sessions are relaxed and you set the pace.

Mon to Fri, 9 to 5

Professional🇧🇷

Clear Path Counselling, Manaus

Practical help for people dealing with adjusting to a disability and chronic pain, plus a weekly drop-in.

Mon to Fri, 9 to 5

ProfessionalLow cost🇧🇷

Goiânia Talking Therapies

Run by people who have been through caring for someone with cancer and adjusting to a disability themselves.

Evenings and weekends

Professional🇧🇷

Heitor Counselling, Curitiba

Run by people who have been through caring for someone with dementia and diabetes themselves.

Mon to Fri, 9 to 5

ProfessionalFree🇧🇷

Open Door Psychotherapy, São

Run by people who have been through long covid and ms, parkinson's, als and neurological conditions themselves.

Mon to Fri, 9 to 5

Product🇧🇷

Soft Light Sleep Kits, Campo

Run by people who have been through facing a terminal illness and difficult or high-risk pregnancy themselves.

Mon to Fri, 9 to 5

From people who came through it

  • “Not that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.”

    lemon_fox54 · been through rare disease
  • “To whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.”

    Fuz M · been through rare disease
  • “For anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.”

    waveeast1993 · been through rare disease
  • “to whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.”

    hugosong · been through rare disease

Rare disease support in other countries