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Rare disease support in Canada

For people and families facing conditions few doctors have seen. Talk with people in Canada who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Canada circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Canada

ServiceLow costFeatured๐Ÿ‡จ๐Ÿ‡ฆ

Easy Ride Patient Transport, Quebec

We help people with ms, parkinson's, als and neurological conditions and rare disease, in person in Quebec City and online. Sessions are relaxed and you set the pace.

Tue to Sat, 10 to 6

ProfessionalFree๐Ÿ‡จ๐Ÿ‡ฆ

Kelowna Grief Counselling

We help people with chronic pain and rare disease, in person in Kelowna and online. Sessions are relaxed and you set the pace.

Evenings and weekends

ProfessionalFree๐Ÿ‡จ๐Ÿ‡ฆ

Travis & Partners Family Law, Mississauga

We help people with facing a terminal illness and living with cancer, in person in Mississauga and online. Sessions are relaxed and you set the pace.

Evenings and weekends

ProfessionalFree๐Ÿ‡จ๐Ÿ‡ฆ

Windsor Talking Therapies

Run by people who have been through stroke recovery and rare disease themselves.

Weekdays and Saturday mornings

ProfessionalFreeFeatured๐Ÿ‡จ๐Ÿ‡ฆ

Noah & Partners Family Law, Vancouver

Run by people who have been through living with cancer and caring for someone with dementia themselves.

Mon to Fri, 9 to 5

ProfessionalLow costFeatured๐Ÿ‡จ๐Ÿ‡ฆ

Northside Debt Advice, Surrey

Run by people who have been through caring for someone with cancer and long covid themselves.

Mon to Fri, 9 to 5

ProfessionalFree๐Ÿ‡จ๐Ÿ‡ฆ

Bo & Partners Family Law, Mississauga

A small team supporting chronic illness and stroke recovery. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

Professional๐Ÿ‡จ๐Ÿ‡ฆ

Clear Path Counselling, Kelowna

A small team supporting diabetes and infertility and ivf. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

Professional๐Ÿ‡จ๐Ÿ‡ฆ

Clear Path Counselling, Ottawa

Run by people who have been through chronic pain and ms, parkinson's, als and neurological conditions themselves.

Weekdays and Saturday mornings

From people who came through it

  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease

Rare disease support in other countries