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Rare disease support in Switzerland

For people and families facing conditions few doctors have seen. Talk with people in Switzerland who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Switzerland circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Switzerland

ProfessionalLow cost๐Ÿ‡จ๐Ÿ‡ญ

Daniel Counselling, Lucerne

A small team supporting living with cancer and stroke recovery. Free first conversation, then low-cost sessions.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œHello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.โ€

    tide_flame45 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease

Rare disease support in other countries