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Rare disease support in Chile

For people and families facing conditions few doctors have seen. Talk with people in Chile who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Chile circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Chile

Professional๐Ÿ‡จ๐Ÿ‡ฑ

Ezequiel Counselling

Practical help for people dealing with living with cancer and diabetes, plus a weekly drop-in.

Weekdays and Saturday mornings

ProfessionalLow cost๐Ÿ‡จ๐Ÿ‡ฑ

Lucas & Partners Family Law

Run by people who have been through living with cancer and diabetes themselves.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease
  • โ€œto whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.โ€

    hugosong ยท been through rare disease
  • โ€œReading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.โ€

    lovely_quiet ยท been through rare disease

Rare disease support in other countries