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Rare disease support in Colombia

For people and families facing conditions few doctors have seen. Talk with people in Colombia who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Colombia circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Colombia

ProfessionalFree๐Ÿ‡จ๐Ÿ‡ด

Northside Debt Advice, Barranquilla

Practical help for people dealing with long covid and facing a terminal illness, plus a weekly drop-in.

Weekdays and Saturday mornings

Community๐Ÿ‡จ๐Ÿ‡ด

Walk and Talk Cali

Run by people who have been through difficult or high-risk pregnancy and stroke recovery themselves.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œHello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.โ€

    tide_flame45 ยท been through rare disease

Rare disease support in other countries