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Rare disease support in Czechia

For people and families facing conditions few doctors have seen. Talk with people in Czechia who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Czechia circle: First timers welcome ยท

If you need someone right now

Help for rare disease in Czechia

ProfessionalFree๐Ÿ‡จ๐Ÿ‡ฟ

Clear Path Counselling, Ostrava

We help people with caring for someone with cancer and ms, parkinson's, als and neurological conditions, in person in Ostrava and online. Sessions are relaxed and you set the pace.

Evenings and weekends

Charity๐Ÿ‡จ๐Ÿ‡ฟ

Hands Together Plzeลˆ

A small team supporting living with cancer and chronic pain. Free first conversation, then low-cost sessions.

Tue to Sat, 10 to 6

ProfessionalFree๐Ÿ‡จ๐Ÿ‡ฟ

Liberec Grief Counselling

A small team supporting caring for someone with cancer and parenting a seriously ill child. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

From people who came through it

  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease

Rare disease support in other countries