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Rare disease support in Germany

For people and families facing conditions few doctors have seen. Talk with people in Germany who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Germany circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Germany

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Frankfurt Grief Counselling, Frankfurt

A small team supporting adjusting to a disability and diabetes. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

ProductLow cost๐Ÿ‡ฉ๐Ÿ‡ช

Calm Corner Weighted Blankets, Bremen

We help people with ms, parkinson's, als and neurological conditions and stroke recovery, in person in Bremen and online. Sessions are relaxed and you set the pace.

Mon to Fri, 9 to 5

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Clear Path Counselling, Kiel

A small team supporting living with cancer and heart conditions. Free first conversation, then low-cost sessions.

Tue to Sat, 10 to 6

Professional๐Ÿ‡ฉ๐Ÿ‡ช

Florian Counselling

Run by people who have been through chronic illness and difficult or high-risk pregnancy themselves.

Evenings and weekends

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Sebastian Counselling

A small team supporting chronic illness and parenting a seriously ill child. Free first conversation, then low-cost sessions.

Tue to Sat, 10 to 6

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Soft Light Sleep Kits, Munich

We help people with chronic illness and long covid, in person in Munich and online. Sessions are relaxed and you set the pace.

Tue to Sat, 10 to 6

From people who came through it

  • โ€œHello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.โ€

    tide_flame45 ยท been through rare disease
  • โ€œto whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.โ€

    hugosong ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease

Rare disease support in other countries