Professional🇳🇬
Calabar Talking Therapies
Practical help for people dealing with chronic illness and rare disease, plus a weekly drop-in.
Evenings and weekends
Rare disease support in Nigeria
For people and families facing conditions few doctors have seen. Talk with people in Nigeria who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Nigeria circle: Weekly check-in ·
If you need someone right now
Help for rare disease in Nigeria
CharityFree🇳🇬
Ilorin Community Food Hub
We help people with chronic pain and caring for someone with cancer, in person in Ilorin and online. Sessions are relaxed and you set the pace.
Evenings and weekends
ProfessionalFree🇳🇬
Open Door Psychotherapy, Kaduna
We help people with chronic pain and rare disease, in person in Kaduna and online. Sessions are relaxed and you set the pace.
Tue to Sat, 10 to 6
ProfessionalFree🇳🇬
Aba Talking Therapies
Run by people who have been through infertility and ivf and caring for someone with dementia themselves.
Weekdays and Saturday mornings
ProfessionalFree🇳🇬
Abuja Grief Counselling, Abuja
Run by people who have been through chronic illness and difficult or high-risk pregnancy themselves.
Evenings and weekends
Professional🇳🇬
Abuja Talking Therapies
Run by people who have been through chronic pain and difficult or high-risk pregnancy themselves.
Tue to Sat, 10 to 6
CharityLow cost🇳🇬
Akure Community Food Hub
Practical help for people dealing with living with hiv and adjusting to a disability, plus a weekly drop-in.
Weekdays and Saturday mornings
Service🇳🇬
Easy Ride Patient Transport, Owerri
Practical help for people dealing with infertility and ivf and living with hiv, plus a weekly drop-in.
Weekdays and Saturday mornings
Professional🇳🇬
Ekene & Partners Family Law
A small team supporting parenting a seriously ill child and stroke recovery. Free first conversation, then low-cost sessions.
Weekdays and Saturday mornings
From people who came through it
“To whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.”
Fuz M · been through rare disease“For anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.”
waveeast1993 · been through rare disease“to whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.”
hugosong · been through rare disease“If you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.”
moonwest · been through rare disease