CommunityFree🇩🇰
Walk and Talk Copenhagen
Practical help for people dealing with rare disease and parenting a seriously ill child, plus a weekly drop-in.
Evenings and weekends
Rare disease support in Denmark
For people and families facing conditions few doctors have seen. Talk with people in Denmark who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Denmark circle: Weekly check-in ·
If you need someone right now
Help for rare disease in Denmark
Professional🇩🇰
Hugo Therapy Practice
We help people with living with cancer and facing a terminal illness, in person in Aarhus and online. Sessions are relaxed and you set the pace.
Evenings and weekends
ProfessionalLow cost🇩🇰
Northside Debt Advice, Copenhagen
Practical help for people dealing with living with cancer and facing a terminal illness, plus a weekly drop-in.
Weekdays and Saturday mornings
From people who came through it
“Reading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.”
spark_dog33 · been through rare disease“Hello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.”
tide_flame45 · been through rare disease“Not that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.”
lemon_fox54 · been through rare disease“For anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.”
waveeast1993 · been through rare disease