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Rare disease support in Egypt

For people and families facing conditions few doctors have seen. Talk with people in Egypt who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Egypt circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Egypt

Professional๐Ÿ‡ช๐Ÿ‡ฌ

Clear Path Counselling, Tanta

We help people with ms, parkinson's, als and neurological conditions and difficult or high-risk pregnancy, in person in Tanta and online. Sessions are relaxed and you set the pace.

Evenings and weekends

ProductFree๐Ÿ‡ช๐Ÿ‡ฌ

Soft Light Sleep Kits, Giza

Practical help for people dealing with diabetes and stroke recovery, plus a weekly drop-in.

Mon to Fri, 9 to 5

ProfessionalLow cost๐Ÿ‡ช๐Ÿ‡ฌ

Wael Counselling

Run by people who have been through living with cancer and organ transplant themselves.

Tue to Sat, 10 to 6

From people who came through it

  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease
  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease

Rare disease support in other countries