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Rare disease support in Italy

For people and families facing conditions few doctors have seen. Talk with people in Italy who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Italy circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Italy

ProfessionalLow cost๐Ÿ‡ฎ๐Ÿ‡น

Carmine Therapy Practice

We help people with adjusting to a disability and chronic pain, in person in Turin and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

ProfessionalLow costFeatured๐Ÿ‡ฎ๐Ÿ‡น

Luca Counselling

Practical help for people dealing with diabetes and organ transplant, plus a weekly drop-in.

Evenings and weekends

ProfessionalFreeFeatured๐Ÿ‡ฎ๐Ÿ‡น

Northside Debt Advice, Milan

We help people with organ transplant and chronic illness, in person in Milan and online. Sessions are relaxed and you set the pace.

Mon to Fri, 9 to 5

Professional๐Ÿ‡ฎ๐Ÿ‡น

Alessandro & Partners Family Law

A small team supporting infertility and ivf and facing a terminal illness. Free first conversation, then low-cost sessions.

Evenings and weekends

Professional๐Ÿ‡ฎ๐Ÿ‡น

Bari Grief Counselling

A small team supporting living with hiv and chronic pain. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

CommunityLow cost๐Ÿ‡ฎ๐Ÿ‡น

Parma Peer Support Group

We help people with chronic pain and difficult or high-risk pregnancy, in person in Parma and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

From people who came through it

  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.โ€

    lovely_quiet ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œto whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.โ€

    hugosong ยท been through rare disease

Rare disease support in other countries