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Rare disease support in Ethiopia

For people and families facing conditions few doctors have seen. Talk with people in Ethiopia who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Ethiopia circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Ethiopia

ProductLow cost๐Ÿ‡ช๐Ÿ‡น

Soft Light Sleep Kits, Adama

A small team supporting infertility and ivf and diabetes. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

Community๐Ÿ‡ช๐Ÿ‡น

Walk and Talk Gondar

We help people with living with cancer and living with hiv, in person in Gondar and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

From people who came through it

  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease

Rare disease support in other countries