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Rare disease support in Hong Kong SAR China

For people and families facing conditions few doctors have seen. Talk with people in Hong Kong SAR China who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Hong Kong SAR China circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Hong Kong SAR China

ProfessionalFeatured๐Ÿ‡ญ๐Ÿ‡ฐ

Tsuen Talking Therapies

We help people with caring for someone with cancer and living with cancer, in person in Tsuen Wan and online. Sessions are relaxed and you set the pace.

Evenings and weekends

Service๐Ÿ‡ญ๐Ÿ‡ฐ

Steady Hands Care, Wan

Run by people who have been through diabetes and adjusting to a disability themselves.

Weekdays and Saturday mornings

From people who came through it

  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease

Rare disease support in other countries