Service🇲🇾
Easy Ride Patient Transport, Kuala
We help people with stroke recovery and heart conditions, in person in Kuala Lumpur and online. Sessions are relaxed and you set the pace.
Tue to Sat, 10 to 6
Rare disease support in Malaysia
For people and families facing conditions few doctors have seen. Talk with people in Malaysia who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Malaysia circle: Weekly check-in ·
If you need someone right now
Help for rare disease in Malaysia
Charity🇲🇾
Petaling Community Food Hub
A small team supporting organ transplant and living with hiv. Free first conversation, then low-cost sessions.
Evenings and weekends
From people who came through it
“To whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.”
Fuz M · been through rare disease“Reading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.”
lovely_quiet · been through rare disease“If you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.”
moonwest · been through rare disease“When you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.”
Gareth H · been through rare disease