Charity🇳🇿
The Lantern Trust, Nelson
A small team supporting diabetes and living with cancer. Free first conversation, then low-cost sessions.
Weekdays and Saturday mornings
Rare disease support in New Zealand
For people and families facing conditions few doctors have seen. Talk with people in New Zealand who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the New Zealand circle: Weekly check-in ·
If you need someone right now
Help for rare disease in New Zealand
From people who came through it
“Not that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.”
lemon_fox54 · been through rare disease“Reading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.”
spark_dog33 · been through rare disease“Hello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.”
tide_flame45 · been through rare disease“to whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.”
hugosong · been through rare disease