Skip to content
SupportMeet

Rare disease support in Philippines

For people and families facing conditions few doctors have seen. Talk with people in Philippines who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Philippines circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Philippines

ProfessionalFree๐Ÿ‡ต๐Ÿ‡ญ

Clear Path Counselling, Cagayan

We help people with facing a terminal illness and rare disease, in person in Cagayan de Oro and online. Sessions are relaxed and you set the pace.

Tue to Sat, 10 to 6

ServiceFree๐Ÿ‡ต๐Ÿ‡ญ

Easy Ride Patient Transport, Angeles

Run by people who have been through chronic illness and infertility and ivf themselves.

Tue to Sat, 10 to 6

ProfessionalFree๐Ÿ‡ต๐Ÿ‡ญ

Ian & Partners Family Law

We help people with ms, parkinson's, als and neurological conditions and rare disease, in person in Cebu City and online. Sessions are relaxed and you set the pace.

Weekdays and Saturday mornings

Service๐Ÿ‡ต๐Ÿ‡ญ

Makati Home Help

Practical help for people dealing with chronic illness and heart conditions, plus a weekly drop-in.

Weekdays and Saturday mornings

ProfessionalFree๐Ÿ‡ต๐Ÿ‡ญ

Clear Path Counselling, Baguio

We help people with living with cancer and parenting a seriously ill child, in person in Baguio and online. Sessions are relaxed and you set the pace.

Tue to Sat, 10 to 6

Professional๐Ÿ‡ต๐Ÿ‡ญ

Iloilo Grief Counselling

A small team supporting facing a terminal illness and caring for someone with dementia. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

ProfessionalLow cost๐Ÿ‡ต๐Ÿ‡ญ

Jhon Counselling

We help people with living with cancer and ms, parkinson's, als and neurological conditions, in person in Manila and online. Sessions are relaxed and you set the pace.

Evenings and weekends

Professional๐Ÿ‡ต๐Ÿ‡ญ

Lapu-Lapu Talking Therapies, Lapu-Lapu

Run by people who have been through chronic illness and long covid themselves.

Weekdays and Saturday mornings

ProfessionalLow cost๐Ÿ‡ต๐Ÿ‡ญ

Northside Debt Advice, Antipolo

Practical help for people dealing with living with cancer and stroke recovery, plus a weekly drop-in.

Evenings and weekends

From people who came through it

  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease

Rare disease support in other countries