Charity🇵🇰
Sialkot Carers Network
Run by people who have been through adjusting to a disability and facing a terminal illness themselves.
Tue to Sat, 10 to 6
Rare disease support in Pakistan
For people and families facing conditions few doctors have seen. Talk with people in Pakistan who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Pakistan circle: Weekly check-in ·
If you need someone right now
Help for rare disease in Pakistan
ProfessionalLow costFeatured🇵🇰
Hyderabad Grief Counselling
We help people with diabetes and infertility and ivf, in person in Hyderabad and online. Sessions are relaxed and you set the pace.
Tue to Sat, 10 to 6
ProfessionalFree🇵🇰
Ahmed & Partners Family Law
A small team supporting caring for someone with cancer and stroke recovery. Free first conversation, then low-cost sessions.
Weekdays and Saturday mornings
ProfessionalLow cost🇵🇰
Ali Counselling
We help people with chronic pain and ms, parkinson's, als and neurological conditions, in person in Islamabad and online. Sessions are relaxed and you set the pace.
Tue to Sat, 10 to 6
Professional🇵🇰
Clear Path Counselling, Lahore
We help people with caring for someone with cancer and long covid, in person in Lahore and online. Sessions are relaxed and you set the pace.
Mon to Fri, 9 to 5
ServiceFree🇵🇰
Easy Ride Patient Transport, Lahore
Run by people who have been through caring for someone with dementia and chronic illness themselves.
Evenings and weekends
ProfessionalLow cost🇵🇰
Gujranwala Grief Counselling, Gujranwala
A small team supporting caring for someone with cancer and living with cancer. Free first conversation, then low-cost sessions.
Mon to Fri, 9 to 5
Professional🇵🇰
Sohail & Partners Family Law
Run by people who have been through ms, parkinson's, als and neurological conditions and diabetes themselves.
Mon to Fri, 9 to 5
From people who came through it
“When you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.”
Gareth H · been through rare disease“To whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.”
Fuz M · been through rare disease“Reading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.”
lovely_quiet · been through rare disease“Not that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.”
lemon_fox54 · been through rare disease