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Rare disease support in Romania

For people and families facing conditions few doctors have seen. Talk with people in Romania who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Romania circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Romania

Professional๐Ÿ‡ท๐Ÿ‡ด

Craiova Grief Counselling

Run by people who have been through diabetes and facing a terminal illness themselves.

Weekdays and Saturday mornings

ProfessionalLow cost๐Ÿ‡ท๐Ÿ‡ด

Sibiu Talking Therapies

We help people with long covid and ms, parkinson's, als and neurological conditions, in person in Sibiu and online. Sessions are relaxed and you set the pace.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œReading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.โ€

    Saeed M ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease

Rare disease support in other countries