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Rare disease support in Saudi Arabia

For people and families facing conditions few doctors have seen. Talk with people in Saudi Arabia who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Saudi Arabia circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Saudi Arabia

ProfessionalFree๐Ÿ‡ธ๐Ÿ‡ฆ

Clear Path Counselling, Jeddah

We help people with long covid and caring for someone with dementia, in person in Jeddah and online. Sessions are relaxed and you set the pace.

Tue to Sat, 10 to 6

From people who came through it

  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œReading this late at night? I've been there. I was right where you are two years ago. For me it was a diagnosis code that does not fit the forms. I can talk about it now without falling apart. It comes back slowly, like feeling in your fingers after the cold. Sending love.โ€

    lovely_quiet ยท been through rare disease
  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œWhen you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.โ€

    Gareth H ยท been through rare disease

Rare disease support in other countries