CharityFree🇸🇬
Hands Together Punggol
Run by people who have been through rare disease and diabetes themselves.
Evenings and weekends
Rare disease support in Singapore
For people and families facing conditions few doctors have seen. Talk with people in Singapore who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the Singapore circle: Weekly check-in ·
If you need someone right now
Help for rare disease in Singapore
Professional🇸🇬
Kai Counselling
We help people with chronic illness and rare disease, in person in Bedok and online. Sessions are relaxed and you set the pace.
Weekdays and Saturday mornings
ProfessionalFree🇸🇬
Northside Debt Advice, Punggol
Run by people who have been through living with cancer and rare disease themselves.
Tue to Sat, 10 to 6
From people who came through it
“to whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.”
hugosong · been through rare disease“If you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.”
moonwest · been through rare disease“When you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.”
Gareth H · been through rare disease“Not that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.”
lemon_fox54 · been through rare disease