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Rare disease support in Ukraine

For people and families facing conditions few doctors have seen. Talk with people in Ukraine who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Ukraine circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Ukraine

ProfessionalLow cost๐Ÿ‡บ๐Ÿ‡ฆ

Yurii Counselling

A small team supporting chronic illness and facing a terminal illness. Free first conversation, then low-cost sessions.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œIf you've just found this place, I was in the same place in 2022. It was a Facebook group in another time zone and I couldn't see past it. I've started painting again. One day at a time.โ€

    moonwest ยท been through rare disease
  • โ€œNot that long ago, about a year, that was me. Back then it was flying to a specialist. Some weeks I don't think about it at all. Bit by bit it comes back.โ€

    lemon_fox54 ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œto whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.โ€

    hugosong ยท been through rare disease

Rare disease support in other countries