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Rare disease support in Uganda

For people and families facing conditions few doctors have seen. Talk with people in Uganda who know what it is like, find help near you, and join the worldwide circle too. Free, always.

Next gathering in the Uganda circle: Weekly check-in ยท

If you need someone right now

Help for rare disease in Uganda

CharityLow cost๐Ÿ‡บ๐Ÿ‡ฌ

Lira Carers Network

We help people with chronic pain and rare disease, in person in Lira and online. Sessions are relaxed and you set the pace.

Evenings and weekends

ProfessionalFreeFeatured๐Ÿ‡บ๐Ÿ‡ฌ

Lira Grief Counselling

A small team supporting infertility and ivf and parenting a seriously ill child. Free first conversation, then low-cost sessions.

Weekdays and Saturday mornings

Professional๐Ÿ‡บ๐Ÿ‡ฌ

Clear Path Counselling, Entebbe

Run by people who have been through living with cancer and chronic illness themselves.

Weekdays and Saturday mornings

Professional๐Ÿ‡บ๐Ÿ‡ฌ

Patrick Counselling

Run by people who have been through diabetes and parenting a seriously ill child themselves.

Mon to Fri, 9 to 5

From people who came through it

  • โ€œFor anyone new to this: I've been there. For me it was about three years ago. I remember explaining it to every new doctor like it was yesterday. Yesterday I booked a holiday. Bit by bit it comes back. You've got this, even if it doesn't feel like it.โ€

    waveeast1993 ยท been through rare disease
  • โ€œTo whoever needs this: A year and a half ago I was exactly where you are. For me it was a diagnosis code that does not fit the forms. I got a new job in April. It comes back so slowly you don't notice until one day you do. From someone who gets it.โ€

    Fuz M ยท been through rare disease
  • โ€œHello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.โ€

    tide_flame45 ยท been through rare disease
  • โ€œReading this late at night? I've been there. About three years ago, that was me. Back then, a condition only 300 people in the country have. I laugh properly again.โ€

    spark_dog33 ยท been through rare disease

Rare disease support in other countries