ProductFeatured🇿🇦
Soft Light Sleep Kits, East
Run by people who have been through chronic illness and long covid themselves.
Mon to Fri, 9 to 5
Rare disease support in South Africa
For people and families facing conditions few doctors have seen. Talk with people in South Africa who know what it is like, find help near you, and join the worldwide circle too. Free, always.
Next gathering in the South Africa circle: Weekly check-in ·
If you need someone right now
Help for rare disease in South Africa
ProfessionalLow cost🇿🇦
Karabo Therapy Practice
Run by people who have been through living with cancer and long covid themselves.
Tue to Sat, 10 to 6
Professional🇿🇦
Mandla Counselling
We help people with organ transplant and caring for someone with cancer, in person in Bloemfontein and online. Sessions are relaxed and you set the pace.
Mon to Fri, 9 to 5
ProfessionalFree🇿🇦
Northside Debt Advice, Kimberley
A small team supporting organ transplant and heart conditions. Free first conversation, then low-cost sessions.
Weekdays and Saturday mornings
ProfessionalFree🇿🇦
Open Door Psychotherapy, Gqeberha
Run by people who have been through long covid and heart conditions themselves.
Tue to Sat, 10 to 6
ProfessionalFree🇿🇦
Simba Therapy Practice, Pietermaritzburg
A small team supporting living with cancer and caring for someone with cancer. Free first conversation, then low-cost sessions.
Weekdays and Saturday mornings
Community🇿🇦
The Pietermaritzburg Men's Shed, Pietermaritzburg
Practical help for people dealing with caring for someone with cancer and organ transplant, plus a weekly drop-in.
Tue to Sat, 10 to 6
From people who came through it
“Hello from the other side of it. I was right where you are not that long ago, about a year. It was flying to a specialist and I couldn't see past it. Some weeks I don't think about it at all. Bit by bit it comes back. Be gentle with yourself.”
tide_flame45 · been through rare disease“Reading this late at night? I've been there. I've been there. For me it was not that long ago, about a year. A genetic test that took two years, and I couldn't see past it. I can talk about it now without falling apart. It's slow, but it does come back.”
Saeed M · been through rare disease“When you first hear the word rare, it feels like a door slamming. You'll spend months explaining it to doctors and yourself. Some days you'll faint in the queue at the shop and feel like a spectacle. But you'll also find people who listen. You'll learn to pace yourself. You'll get a caseworker who helps with the bills. It won't be fixed, but it will be managed. And you'll still play guitar badly, and that's something.”
Gareth H · been through rare disease“to whoever needs this: i was where you are in february. nobody at school had heard of it. today i cooked a proper dinner and enjoyed it. things come back, slower than you'd like but they do.”
hugosong · been through rare disease